Help me find my best design or logo for “Dementia Wisdom and Joy,” my new newsletter to help people who live with dementia, like my husband, and their care partners, like me, thrive as well as possible, as long as possible.
I already know so many of the stories I want people to know:
How doctors who live with dementia are teaching other doctors how to diagnose and deal with dementia the right way, with compassion, unflinching honesty, and loads of creative resources.
How people who live with dementia say no to support groups run by medical experts and “YES!” to those run by their peers.
How 5th graders in at least one Native American tribal school are all learning about dementia, so they can help their grandparents thrive with the disease.
How throughout the world people play together, dream together, pray together to reawaken the natural genius that was born in all of us, but often trained out of us. Things like play, art-making, art-viewing, awareness, laughter – things that stay alive long after memory has faded.
How every night, after we have named at least 3 gratitudes for the day, my husband and I touch each other with the intent to embody the memories of our lives together, so even if the memory of our names or faces go away, our bodies remember.
Our hearts remember. Our souls remember.
If the newsletter carries my favorite colors it will be shades of blue, green, and purple.
Or maybe amber, orange, gold, with a touch of red, like art in the window over my desk.
Or maybe colors I cannot yet imagine.
What symbol the newsletter carries, I know not yet, though there are many images: John and me laughing or smiling alone, together, or on ZOOM calls with buddies around the world.
Us sitting together on our patio, waving to neighbors in our small Shenandoah Valley of Virginia town, so close to the Massanutten Mountain we can pick out individual trees, and so close to family that we have found refuge here.
My new job of finding and reporting resources to help people thrive; our coming adventure to be interviewed for a PBS documentary, knowing that each new interview, each new sharing of resources takes us all one more step away from stigma and fear, one big step towards a world powered by curiosity, nurtured by awe.
Can you help me pray, laugh, or otherwise find our symbol, probably something abstract that gets simply to the essence of dementia wisdom and joy?
After almost 16 years of living through one of the most expensive illnesses in the world, including so much loss of income along the way so we could take care of dementia needs, I don’t have money to pay for your ideas. But I can share with you the sheer joy of rolling up our sleeves to tackle something tough with cunning and curiosity.
If you or someone you love is battling dementia or caregiving challenges, I have much to share with them. I already have much to share with anyone who needs direct dementia information or inspiration, and it’s all translatable to other human challenges.
Got ideas? Want to get the newsletter when it launches and some of my coolest resources now? Write me at
pat@visionary-resources.com. If possible, send pictures in the body of the e-mail rather than as an attachment. Or just pass on an idea, like say a heart bursting into flower, without a drawing.
All contributions are welcome. Thank you, Pat Sullivan
p.s. John says this piece is filled with too many images and ideas. He may be right, which in one way is a good thing. The growth of new ways to thrive with dementia are exploding rapidly, sometimes as part of a huge paradigm shift, sometimes as subtle shifts that create a whole new way to view the world of dementia … the way one tiny shift of a kaleidoscope changes the whole picture.
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